Jo and Maria's Wedding Day

Although it's raining and cold. despite being the end of June, I'm sure Jo and Maria have woken to a glorious and exciting day. We were all going to share this day with them, but now it looks like it will only be me. We knew Cherry wasn't likely to be fit to go and she confirmed it this morning by throwing up her feed! She knows we need VERY CLEAR AND VERY LOUD answers. So now there is no doubt. In fact, I am finding it hard to tap into any enthusiasm for the day as I contemplate the cold, wet, hanging around ahead. But for Jo I will dig very deep. He deserves a bright and radiant day. Later tonight I will write of the happiness and love, which the day will be full of, and honour our friendship.

From Crisis To Disaster

Started this morning thinking we had made some progress with Cherry's PEG situation and am now into the afternoon where it is clear that for the one step forward we thought we'd taken, we are now slipping ten steps back. Ten days, actually, as that is the length of the antibiotic course we have to give her (along with Nistatin to counteract the candida growth)to eradicate the infection that is in the tube and probably in her too, before we can hope to have movement on the PEG change front. I want to cry. Mostly I want her to feel well and be eating and enjoying her food again. I want to be able to concentrate on growing her life, not stopping growths in her PEG. Angels xx

My new Blog

Got a burning desire to move away from my old blog and found a new blog, where nobody knows my name and the rules are washed clean again. Actually, I just want to compare blog things cos I do quite like googlemail and I need somewhere to write, write write! Angels xx